DUOS Blog

The article titled “Achieving Procedural Parity in Managing Access to Genomic and Related Health Data” (DOI: 10.1089/bio.2022.0205) addresses the disparities in data access procedures between traditional biobanks and emerging cloud-based genomic data platforms. The authors, including Jonathan Lawson, argue that while technological advancements have streamlined data sharing, policy frameworks have not kept pace, leading to inconsistencies in data access governance. They advocate for harmonized policies that align with technological capabilities to ensure equitable, efficient, and secure access to genomic and health-related data. The article emphasizes the need for policy evolution to fully leverage technologies that facilitate data sharing and drive scientific discovery.​